Meeting Archive:
Hidden Figures - The Value of Outcome Data Transparency

Meeting Description:
The American Academy of Pediatrics and the National Center for Birth Defects and Developmental Disabilities invite you to join us for the webinar Hidden Figures - The Value of Outcome Data Transparency. For many consumers of healthcare services, data transparency can serve as an essential aspect of successful patient engagement and shared decision making. With data transparency, patients and families, as well as the providers, are empowered with information and knowledge to make a well-informed decision on their healthcare options. Families in need of medical services can benefit greatly from open and honest communication on hospital outcome data. For the provider, having this information also allows the provider to evaluate performance more completely and to work to improve any deficiencies. The webinar is free but prior registration is required.

At the conclusion of the webinar, participants will be able to:

  • Explain the challenges and opportunities with data transparency for patients and families living with a birth defect and/or other special healthcare needs
  • Help providers recognize the value of transparency to patients and families
  • Apply strategies for successful translation from prose to practice to improve shared decision making.

Continuing Medical Education or other educational credits are NOT being offered for this session.

Date: Tue, Jun 13, 2017
Time: 02:00 PM EDT
Duration: 1 hour
Host(s): Rachel Daskalov
 Presenter Information
Nicolas Madsen, MD, MPH
Speaker Photo

Nicolas L. Madsen, MD, MPH, is the Director of Cardiac Step-Down Unit at Cincinnati Children's Hospital, and Assistant Professor, University of Cincinnati Department of Pediatrics. Dr Madsen’s clinical focus is in general and preventative cardiology. His research interests also focus on the prevention of cardiac disease processes. Specifically, Dr Madsen aims to understand the implications of traditional cardiovascular risk factors such as obesity, hypertension and sedentary lifestyle on persons with congenital heart disease. Additionally, he is focused on the prevention of sudden cardiac death in adolescent athletes by way of optimizing preparticipation sports screening. Dr Madsen has received several national awards for his research and is an active member of the American Heart Association and American Academy of Pediatrics.

Amy E. Basken, MS
Speaker Photo

Amy E. Basken, MS is a founding member of the Pediatric Congenital Heart Association. As the mother of a child with congenital heart disease (CHD), Amy has had the privilege of spending the last 11 years leading CHD advocacy efforts for many of the largest national CHD organizations, coalition and consortiums. In her role as Co-founder and Director of Programs at the Pediatric Congenital Heart Association, she works with patients, families, providers and policy makers to educate and advocate around critical issues such as federal research funding, the importance of life-long care. Amy has become a nationally recognized speaker on the importance of data transparency.